The Butterfly Effect

I’ve had a particularly hard time finding my voice and tone today. Sleep has alluded me all week with Easter and this massive date coming upon me. It’s DEFINITELY not a #yellyvoice I find nor have used. I am profoundly troubled and amazed and defeated??? that Lily LaRue has been gone 3 years. It feels…

papillon

On my way to the DC DIPG Collaborative meeting, driving 95 South is not something that comes easy nor do I look forward to it. The stomach butterflies are violent and vicious and my anxiety is at an all time high. It’s not the miles nor hours. This is a drive that we have done…

Love for Lily 3.0

After a few days of rest and (still) emptying out cars and trunks of Love for Lily boxes, I have had time to reflect. I would be remiss and negligent in attempting to Facebook tag all of you who made Love For Lily – Annual Lily LaRue Foundation Golf Outing 3.0 the amazing and successful…

Leap Year

This 2016 February month is not the one I would have chosen as a leap year. The one with an extra day. I would have preferred having an extra day with my Lily LaRue in 2015, who would then, unknowingly,  leave this earth too soon ; leave my arms,  2 months later, April 6, 2015….

My Minefield of Poultry and Pie #boom 

For years I would start every sentence the week before Thanksgiving with ” I am thankful for…” FB posts.  Always sincere albeit some  slightly dripping with satire or sarcasm, ex: 2014 Thanksgiving had me thankful for Lily’s good lab work and stabile mri  results. With the exception of the brain tumor in her head, it…

#ifyoudontknownowyouknow

I have tried to post our March  so many times. I have draft after draft. All incomplete thoughts- memories, accounts. Everything. All of it so I can’t forget or think it was just a nightmare. Or a dream. March was absolutely filled with stellar and amazing *amazing* firsts and dreams. Lily milked and named cows…