Times Gone By….

Should old acquaintance be forgot And never brought to mind? Should old acquaintance be forgot, And long, long ago And for long, long ago, my dear For long, long ago. We’ll take a cup of kindness yet For long, long ago. And surely youll buy your pint-jug! And surely I’ll buy mine! And we’ll take…

The Butterfly Effect

I’ve had a particularly hard time finding my voice and tone today. Sleep has alluded me all week with Easter and this massive date coming upon me. It’s DEFINITELY not a #yellyvoice I find nor have used. I am profoundly troubled and amazed and defeated??? that Lily LaRue has been gone 3 years. It feels…

papillon

On my way to the DC DIPG Collaborative meeting, driving 95 South is not something that comes easy nor do I look forward to it. The stomach butterflies are violent and vicious and my anxiety is at an all time high. It’s not the miles nor hours. This is a drive that we have done…

Home

Well, it’s official. We are moving. Most of you have known we were looking, but not too many know how this came about. 5 years ago this month, Hurricane Irene devastated our cul de sac and surrounding area  in Wayne, NJ. So much so, that talks of hypothetical buyouts became reality. Our beautiful neighborhood, my…

Love for Lily 3.0

After a few days of rest and (still) emptying out cars and trunks of Love for Lily boxes, I have had time to reflect. I would be remiss and negligent in attempting to Facebook tag all of you who made Love For Lily – Annual Lily LaRue Foundation Golf Outing 3.0 the amazing and successful…

Strawberry Moon 2016

The summer solstice has always been honored and revered in my gypsy life. I come from a long line of European farmers, Vikings and warriors and gatherers;those that have traveled,lived and thrived from and of the Earth. I have always sought out #thewheelinthesky. The four elements of earth air fire water has been venerated annually…

Cancerversary is the WORST word EVER

I’m *so* stupid. How did I think I wouldn’t feel the full weight of an anniversary sucker punch. 2 years later… Freaking California Chrome. The year before was”Where’s Lil” ….Let me explain… Every year we traveled for a family vacation in Hershey Park PA that always coincided and included Kentucky Derby horse races. We joked…

Always 

I chose to walk the beach today in simple and natural commemoration of the past few days and in preparation of the days before me.    I vowed on this ” Eat, Pray, Love” trip ( thank you $59 jet blue ticket) I would recognize moments and conversation and *time spent with* as gifts. Empowerment…

My Minefield of Poultry and Pie #boom 

For years I would start every sentence the week before Thanksgiving with ” I am thankful for…” FB posts.  Always sincere albeit some  slightly dripping with satire or sarcasm, ex: 2014 Thanksgiving had me thankful for Lily’s good lab work and stabile mri  results. With the exception of the brain tumor in her head, it…

#ifyoudontknownowyouknow

I have tried to post our March  so many times. I have draft after draft. All incomplete thoughts- memories, accounts. Everything. All of it so I can’t forget or think it was just a nightmare. Or a dream. March was absolutely filled with stellar and amazing *amazing* firsts and dreams. Lily milked and named cows…